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Best tweets:

Prabhat Kumar Singh 20/08/2018 04:31
Ma'am a peaceful country has been turning into a mess. Being compasssionate sometime becomes a burden. Need to learn a lot from Israil. Saving own territorial integrity from illegal immigrants more important instead be compassionate to them.
The cause of macular degeneration is not conclusively known. PKU is a rare, inherited condition that affects about one in every 14,000 babies born in the United States. PKU prevents a victim's body fr...
Kate Learoyd 20/08/2018 08:57
I’m back from a lovely holiday in Italy. Sicily has lots of gutsy vegetarian food and amazing fresh veggies everywhere - here’s a #pku friendly recipe. Sicilian spaghetti alla norma | Pasta recipes | Jamie Oliver recipes http://www. jamieoliver.com/recipes/pasta- recipes/sicilian-spaghetti-alla-norma/#.W3qA-UiMtd0.twitter   …
People born with phenylketonuria (PKU) cannot process the amino acid phenylalanine, which is found in most proteins. Even an extremely low-protein diet may not protect people with PKU from cognitive i...
NSPKU 20/08/2018 06:40
My #pku exchange free Coconut-Vanilla Strawberry Hearts.... (Nb there is Phe in acquafaba & also Coyo, but not countable in this portion size)
http://pic.twitter.com/1ArGHm76Za
My #pku exchange free  Coconut-Vanilla Strawberry Hearts....   (Nb there is Phe in acquafaba & also Coyo, but not countable in this portion size) <br>http://pic.twitter.com/1ArGHm76Za
Company on Track to Begin and Report Initial Data from Phase 1/2 Gene Therapy Program and Advance Gene Editing Platform into IND-Enabling Studies in PKU in 2019 - BEDFORD, Mass., Aug. 13, 2018 /PRNews...
Top shemale jakarta 20/08/2018 03:58
Ready for shemale sexi bigh cock and prfesional service avail/member video Bo camsex BDSM scene membervideo WA:08131808974 @waria_highclass @LittleBitBite @Berdjaya_pku_ @BigBitBite Happycroot #shemalejakarta #ladyboyjakarta #wariajakarta #camsex #membervideo #vcs
http://pic.twitter.com/eqNfRosnYI
topsy
The data demonstrate that oral administration of SYNB1618 significantly reduced blood phenylalanine (Phe) levels, the key metabolite associated with PKU, in mouse models of PKU and resulted in dose-de...
Cambrooke UK 19/08/2018 09:08
In Oct & Nov we're holding our first ever UK patient events! Belfast, Manchester and London, we're coming at you! In Belfast and Manchester we'll be hosting #PKU family days & London is for those struggling with or trying to get back on diet, judgement free zone! #PKUdiet
http://pic.twitter.com/E4Iw2xlEYx
topsy
The Irish actor, who you may recognise from Handsome Devil (2016), was born with PKU (Phenylketonuria) - a rare genetic disorder that prevents the body from breaking down an amino acid called phenylal...
NSPKU 18/08/2018 06:51
I want to pay tribute to commitment and willingness to help of metabolic dietitians all over the world. Here is advice sent to me for a refugee (now in the UK) who has #pku #phenylketonuria. Dietitians all over the world help each other to help ppl w #pku
http://pic.twitter.com/1qLkt9Rwx6
I want to pay tribute to commitment and willingness to help of metabolic dietitians all over the world. Here is advice sent to me for a refugee (now in the UK) who has #pku #phenylketonuria. Dietitians all over the world help each other to help ppl w #pku  <br>http://pic.twitter.com/1qLkt9Rwx6
Sharon Buckley 17/08/2018 09:24
Adam’s need for protein has been driving us all a little crackers of late. So his latest pie creation is beef oxo with onions, garlic and peas! Let’s hope this does the trick #PKU #lowprotein
http://pic.twitter.com/lj6RVQch0A
Adam’s need for protein has been driving us all a little crackers of late. So his latest pie creation is beef oxo with onions, garlic and peas! Let’s hope this does the trick #PKU #lowprotein<br>http://pic.twitter.com/lj6RVQch0A
Top shemale jakarta 17/08/2018 07:45
Thanks you baby from SWISS book for me to night @waria_highclass @Berdjaya_pku_ @LittleBitBite @LittleSweetBite
http://pic.twitter.com/6TpVjNRkzq
David Turner QC 17/08/2018 11:17
[email protected] I know you have been tireless in the fight for ppl with #PKU to have access to #Kuvan. You might be interested in this: as you will see (and doubtless know) there is a systemic problem with rare disease patients gaining access to breakthrough medicines
http://pic.twitter.com/KdCz8tYvJb
.@vickyford I know you have been tireless in the fight for ppl with #PKU to have access to #Kuvan. You might be interested in this: as you will see (and doubtless know) there is a systemic problem with rare disease patients gaining access to breakthrough medicines<br>http://pic.twitter.com/KdCz8tYvJb
Kate Buckland 17/08/2018 10:44
Feeling deflated. Decided to treat myself to a quick stop at a pub by the river on my way home from an appointment. No full sugar soft drink options available now except this - £2.25 for 200ml. It’s this or water, and that’s it as everything else has #aspartame. @AgainstSugarTax
http://pic.twitter.com/sa2gk4IGxi
Feeling deflated. Decided to treat myself to a quick stop at a pub by the river on my way home from an appointment. No full sugar soft drink options available now except this - £2.25 for 200ml. It’s this or water, and that’s it as everything else has #aspartame. @AgainstSugarTax<br>http://pic.twitter.com/sa2gk4IGxi
alexjones 17/08/2018 09:30
Our baby's day 5 heel prick test done today. I dont anticipate her to have #pku as our son hasn't, but feel so grateful we have this diagnostic test which has allowed my sister and I to grow up managing our condition and living full lives #Guthrietest #newbornscreening
http://pic.twitter.com/M1LcZfQO5X
Our baby's day 5 heel prick test done today. I dont anticipate her to have #pku as our son hasn't, but feel so grateful we have this diagnostic test which has allowed my sister and I to grow up managing our condition and living full lives #Guthrietest #newbornscreening<br>http://pic.twitter.com/M1LcZfQO5X
PKU News 16/08/2018 12:31
Looks like a BEAUTIFUL new book on #RareDisease to help kids celebrate their stripes from A to Z! https:// kck.st/2BhRdoY   #PKU @GlobalGenes @RareDiseases
http://pic.twitter.com/jndKHCLjw0
Looks like a BEAUTIFUL new book on #RareDisease to help kids celebrate their stripes from A to Z!  https:// kck.st/2BhRdoY      #PKU @GlobalGenes @RareDiseases<br>http://pic.twitter.com/jndKHCLjw0
BCH Metabolics 15/08/2018 09:09
Whole Creations Dairy and Gluten Free Little Kings Vanilla Mini Sticks. 1 = 1.2g protein (1 PKU exchange)
http://pic.twitter.com/nMi43Pzzz1
Whole Creations Dairy and Gluten Free Little Kings Vanilla Mini Sticks. 1 = 1.2g protein (1 PKU exchange) <br>http://pic.twitter.com/nMi43Pzzz1
BCH Metabolics 15/08/2018 09:05
Whole Creations Dairy & Gluten Free Raspberry Swirl Cones. 1=1.7g protein (1.5 PKU exchanges). Found in @sainsburys
http://pic.twitter.com/mMt408LAT3
Whole Creations Dairy & Gluten Free Raspberry Swirl Cones. 1=1.7g protein (1.5 PKU exchanges). Found in @sainsburys<br>http://pic.twitter.com/mMt408LAT3
Gemma Treanor 14/08/2018 05:37
On this day 3 years ago our baby was diagnosed with PKU. We feel an enormous amount of guilt, resentment towards the condition, & ‘why Amelie’.... BUT we remain positive always! We want her to love the food she can eat & enjoy a ‘normal’ life. The sky’s the limit little one!
http://pic.twitter.com/uSGTje4fcC
On this day 3 years ago our baby was diagnosed with PKU. We feel an enormous amount of guilt, resentment towards the condition, & ‘why Amelie’.... BUT we remain positive always! We want her to love the food she can eat & enjoy a ‘normal’ life. The sky’s the limit little one!  <br>http://pic.twitter.com/uSGTje4fcC
Peking University 14/08/2018 02:55
The opening ceremony of the 24th World Congress of Philosophy (WCP) was held in the Great Hall of the People in Beijing on Monday. The WCP is co-organized by FISP and PKU, and is the 1st time that the "Olympics" of world philosophy has been held in China!• https:// bit.ly/2KPhwmb  
http://pic.twitter.com/J3b6JO9Jfw
The opening ceremony of the 24th World Congress of Philosophy (WCP) was held in the Great Hall of the People in Beijing on Monday. The WCP is co-organized by FISP and PKU, and is the 1st time that the "Olympics" of world philosophy has been held in China!• https:// bit.ly/2KPhwmb     <br>http://pic.twitter.com/J3b6JO9Jfw
Kate Buckland 13/08/2018 10:55
Into week 2 of waiting for my latest #pku blood spot result Spoke to the clinic about waiting times and they said it’s not their fault and nothing they can do about it. They were offended that I expressed my annoyance. Bring on a #homephemonitor so results can be relevant.
Kate Buckland 10/08/2018 06:01
#PKU ham and chorizo risotto - 2 ex of frozen veg, a ham stock cube and one @Hooba_Foods vegan chorizo sausage.
http://pic.twitter.com/IVNR4uInjD
#PKU ham and chorizo risotto - 2 ex of frozen veg, a ham stock cube and one @Hooba_Foods vegan chorizo sausage.<br>http://pic.twitter.com/IVNR4uInjD
Kate Learoyd 10/08/2018 05:36
The appraisal system for rare disease drugs doesn’t work. Pharmaceutical companies can’t even be bothered to go through the charade anymore. The @NICEcomms STA system is the likely route for #pku treatments. It needs to be equitable. It isn’t now. https:// twitter.com/claireywilzz/s tatus/1027959762862960641   …
Lillian Isabella 10/08/2018 05:01
How can people best support those living with #PKU? New #PKUChat with @sheehangilroy mom of someone with PKU, researcher, and empowered PKU advocate. I’m so happy I got to meet her at the NPKUA conference in Atlanta last month. https:// m.youtube.com/watch?v=zt9Rlm 5pXcQ   … #Phenylketonuria
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