RareDisease

Pictures about RareDisease

raredisease jumpic.comshutterstock 375413005 jumpic.comih 140408 rare diseases 800x600 jumpic.comrdd logo transparent jumpic.comraredisease infographic 1 jumpic.comflyer4ggp reco 3 2 jumpic.comrare disease infographic jumpic.comb12f210e ccd8 4362 bace 226421cf9b1e.HR jumpic.comrare disease jumpic.com12 rare 0 jumpic.comrare disease hope cures jumpic.comrare disease day logo jumpic.comrdd logo 2 jumpic.comRDD logo jumpic.comKaranjasick jumpic.comrare disease infographic v2 jumpic.comrare diseases e1442603668138 jumpic.comrare+disease+day+rat jumpic.com


Best tweets:

Christina Lizaso 16/08/2018 04:15
The @NIH has genetic and #RareDiseases info specialists https:// buff.ly/2w1yk3J   #dazzle4rare
http://pic.twitter.com/AEksnmyjQi
The @NIH has genetic and #RareDiseases info specialists  https:// buff.ly/2w1yk3J      #dazzle4rare<br>http://pic.twitter.com/AEksnmyjQi
INDIANAPOLIS -- An Indiana girl has a new outlook on life thanks to some groundbreaking technology. Twelve-year-old Kaylee Marks went blind over the past two years. A rare disease took her vision away ...
NIH 16/08/2018 04:09
About 30 million Americans are living with a #RareDiseases. The Genetic & Rare Diseases Information Center, funded by @ncats_nih_gov & @genome_gov, provides patients and their families with disease information & resources #ThisIsNIH bit.ly/2OSp9eE  
http://pic.twitter.com/VbFnDVDxhU
Ever since doctors diagnosed his son with a rare disease, Doug Woleben has spent every evening on his computer, searching for a way to save the 6-year-old's life. He has mastered the foreign language ...
Kimberly Hartmann 16/08/2018 03:40
Let’s keep up the momentum! #dazzle4rare just has a few days left in the week. For those of us living with #rarediseases it is more than just a week. We live with them every day of our life. So do our family and friends. Rare diseases are affect millions more than just the pt.
http://pic.twitter.com/0BYIiOC9Ch
Let’s keep up the momentum! #dazzle4rare just has a few days left in the week. For those of us living with #rarediseases it is more than just a week. We live with them every day of our life. So do our family and friends. Rare diseases are affect millions more than just the pt. <br>http://pic.twitter.com/0BYIiOC9Ch
Santiago “Santi” Rodriguez, a 14-year-old New London boy who loves soccer and basketball, is a healthy high school sophomore thanks to research and treatment by the National Institutes of Health. But ...
Catabasis 16/08/2018 01:22
Thanks to @MDAnews and the #raredisease community for making #MDASummerCamp possible. Great to see campers having fun!
http://pic.twitter.com/bcjDBeyoL8
topsy
ood morning, everyone, and how are you today? We are doing just fine, thank you, despite another round of gloomy clouds hovering over the Pharmalot campus. Our spirits remain sunny thanks to a bit of ...
KIF1A Kids 16/08/2018 01:13
Listen to this! KIF1A.ORG   Founder, Luke Rosen, chats with Sean and Kyle of @2DDPodcast about the power parents have to advance #RareDisease research! https:// twodisableddudes.com/048-luke-rosen -kif1a-org/   …
http://pic.twitter.com/wM4iQxjQ4p
Listen to this!  http:// KIF1A.ORG      Founder, Luke Rosen, chats with Sean and Kyle of @2DDPodcast about the power parents have to advance #RareDisease research!   https:// twodisableddudes.com/048-luke-rosen -kif1a-org/   … <br>http://pic.twitter.com/wM4iQxjQ4p
(Meredith/WQAD/CNN) -- An Iowa teen died just days before he was supposed to start his freshman year of high school. His humor, that hair, those piercing eyes, and of course, his confidence; 14-year-o...
PKU News 16/08/2018 12:31
Looks like a BEAUTIFUL new book on #RareDisease to help kids celebrate their stripes from A to Z! https:// kck.st/2BhRdoY   #PKU @GlobalGenes @RareDiseases
http://pic.twitter.com/jndKHCLjw0
Looks like a BEAUTIFUL new book on #RareDisease to help kids celebrate their stripes from A to Z!  https:// kck.st/2BhRdoY      #PKU @GlobalGenes @RareDiseases <br>http://pic.twitter.com/jndKHCLjw0
We are continuing with our basic Q&A on #autoinflammatory conditions! Our aim is to continue this Q&A and raise some awareness throughout August, i.e. Autoinflammatory Awareness Month! #raredisease #immune #Science
http://pic.twitter.com/4FZaSSh4Fx
We are continuing with our basic Q&A on #autoinflammatory conditions! Our aim is to continue this Q&A and raise some awareness throughout August, i.e. Autoinflammatory Awareness Month! #raredisease #immune #Science<br>http://pic.twitter.com/4FZaSSh4Fx
IMPC 16/08/2018 11:11
INFRAFRONTIER / IMPC Stakeholder Meeting 2018: @InfrafrontierEU and @IMPC invite medical research experts from all over the world to discuss advances in #RareDiseases and #GeneTherapy using animal models: bit.ly/INFRAFRONTIER_ IMPC   …
http://pic.twitter.com/0pNyVKPpTi
INFRAFRONTIER / IMPC Stakeholder Meeting 2018: @InfrafrontierEU and @IMPC invite medical research experts from all over the world to discuss advances in #RareDiseases and #GeneTherapy using animal models:  http:// bit.ly/INFRAFRONTIER_ IMPC   … <br>http://pic.twitter.com/0pNyVKPpTi
Share4Rare 16/08/2018 11:00
Living with a rare condition may affect your mental health and that of parents and carers. It is vital to have access to mental health support. bit.ly/RDMentalHealth   #RareDisease #MentalHealthMatters
http://pic.twitter.com/LBpA9io3xQ
Living with a rare condition may affect your mental health and that of parents and carers.   It is vital to have access to mental health support.     http:// bit.ly/RDMentalHealth       #RareDisease #MentalHealthMatters<br>http://pic.twitter.com/LBpA9io3xQ
Yoni Maisel. 16/08/2018 10:04
A Very 'Special' Clinic in Pennsylvania's Amish Country Brings Another Big Genetic Discovery https://www. sciencedaily.com/releases/2018/ 08/180813142750.htm   … #ITRTG #BigData #DataScience #biotech #GeneTherapy #SciComm #MedEd #tech #genetics #genomics #science #genealogy #Amish #RareDisease @ClinicSpecChild
http://pic.twitter.com/YIsHovUpsx
A Very 'Special' Clinic in Pennsylvania's Amish Country Brings Another Big Genetic Discovery  https://www. sciencedaily.com/releases/2018/ 08/180813142750.htm   …   #ITRTG #BigData #DataScience #biotech #GeneTherapy #SciComm #MedEd #tech #genetics #genomics #science #genealogy #Amish #RareDisease @ClinicSpecChild<br>http://pic.twitter.com/YIsHovUpsx
Rare Revolution Mag 16/08/2018 09:16
We're really looking forward to attending @findacure_fdn event in Cambridge this evening :) #RareDisease
Mary Rose Roberts 16/08/2018 09:02
It's finally here! @findacure_fdn's #Cambridge #RareDisease Showcase is tonight. Can't wait to meet everyone and hear about the great work taking place in the area
http://pic.twitter.com/1EwG2ECS06
topsy
Yoni Maisel. 15/08/2018 10:06
A Pioneering #RareDisease Patient Receives Gene Therapy...And It's Pretty Cool to Watch (VIDEO) https://www. youtube.com/watch?v=9Sm6Vz X2JLk   … #IoT #ITRTG #BigData #science #inspiration #technology #tech #biotech #MedEd #SciComm #genetics #genomics #RareDiseases #GeneTherapy
http://pic.twitter.com/pKcCcc8HA4
A Pioneering #RareDisease Patient Receives Gene Therapy...And It's Pretty Cool to Watch (VIDEO)  https://www. youtube.com/watch?v=9Sm6Vz X2JLk   …  #IoT #ITRTG #BigData #science #inspiration #technology #tech #biotech #MedEd #SciComm #genetics #genomics #RareDiseases #GeneTherapy<br>http://pic.twitter.com/pKcCcc8HA4
Rudy study 14/08/2018 07:22
Today's the day! We will be taking over @RareRevolutionM Facebook & Twitter pages to share as much as we can about #RUDY and what it means for #rarediseases - you don't want to miss it! #tuesdaytakeover
AutonomicRN© 13/08/2018 07:12
#dazzle4rare, a pack of zebras is called a dazzle. Zebras represent #rarediseases. “When you hear hoof beats think of horses not zebras” instead, sometimes it is the zebra that stands out in front of the crowd. The ones who don’t fit the mold.
http://pic.twitter.com/G44neLtGsS
#dazzle4rare, a pack of zebras  is called a dazzle. Zebras represent #rarediseases. “When you hear hoof beats think of horses not zebras” instead, sometimes it is the zebra that stands out in front of the crowd. The ones who don’t fit the mold. <br>http://pic.twitter.com/G44neLtGsS
Kimberly Hartmann 13/08/2018 07:09
Day 2 #Dazzle4Rare fact: 80% of #rarediseases are caused by a faulty gene!
http://pic.twitter.com/hRIA3aVY6B
Day 2 #Dazzle4Rare fact: 80% of #rarediseases are caused by a faulty gene! <br>http://pic.twitter.com/hRIA3aVY6B
Yoni Maisel. 13/08/2018 10:52
"Mutation-Watch" - (My New Project) - A Weekly Digest of Genetic Discovery Is Now Live https://www. mutationwatch.com/journal   #ITRTG #BigData #DataScience #genetics #OpenScience #IoT #genomics #bioinformatics #Israel #biotech #epilepsy #ChildhoodCancer #MedEd #SciComm #SNRTG #RareDisease
http://pic.twitter.com/HUrG9HcivW
"Mutation-Watch" - (My New Project)  - A Weekly Digest of Genetic Discovery Is Now Live  https://www. mutationwatch.com/journal      #ITRTG #BigData #DataScience #genetics #OpenScience #IoT #genomics #bioinformatics #Israel #biotech #epilepsy #ChildhoodCancer #MedEd #SciComm #SNRTG #RareDisease <br>http://pic.twitter.com/HUrG9HcivW
dazzle4rare 13/08/2018 07:00
[email protected] Let’s #Dazzle4Rare. Help raise awareness 4 #raredisease & search for clues on NGLY1-deficiency.
http://pic.twitter.com/5gRFnIdzNT
.@Mark2Cure Let’s #Dazzle4Rare. Help raise awareness 4 #raredisease & search for clues on NGLY1-deficiency. <br>http://pic.twitter.com/5gRFnIdzNT
I made a video because I am hoping to meet/reach out to other people who also have the very #raredisease #hereditaryangioedema #hae
http://pic.twitter.com/7HARsccZfd
Read More on Twitter